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I just found out I have breast cancer and I wanted to know if anyone can give me some tips on what to do. I'm lost. I'm not scared because I know I can fight and overcome this.

Saana Malik Profile
Asked by

anonymous

Patient over 7 years
 
  • Sharon Danielson Profile
    anonymous
    Survivor since 2007
    Oh Saana, I know we are all very sorry to hear you are starting on this journey. At first, this is a bewildering experience; you don't have a lot of answers because you don't know what questions to ask. You probably know what type of breast cancer you have, and they may have given you a preliminary stage and bits of other information. My advice The following helped me so much at first and throughout this journey & it's pretty simple. Get a 3 ring binder. This will be where you keep ALL copies of your test results. You are entitled to your test results so don't take NO for an answer. Take this binder with you to every one of your appointments. You are going to have a bunch of them. Remember to get a business card from each office you go to see. I taped them on the inside cover of the binder so they would be handy. Have a list of your medication you take, if any. Also have with you important information and telephone numbers on a list as you will be filling out many patient introduction forms from each and every office. Another extremely important thing to do is take your spouse, a relative, or a friend with you to your diagnostic & treatment appointments. This person has to be able to take notes. You are going to be given a lot of information and you won't remember most of it. This is extremely important as you will have those notes to refer back to in upcoming days. Right now, you are still in the "fact-finding" portion of your treatment. Please remember, there are many women on this board you have been where you are and we want to help you along your journey. Your positive attitude is all important! You will also need the support of your family, and friends. We will always be here for you. Please count on women here as your "sisters" we will supply you with much information from our vast collective bunch of experience. You will be ok. We have all walked this path. God's blessings, & take care, Sharon
    over 7 years Flag
    • Saana Malik Profile
      anonymous
      Patient

      Thanks Sharon like said I'm in a fog right now.

      over 7 years Flag
  • Ali S Profile
    anonymous
    Survivor since 2011
    I. Like what the o there's said. Also, be sure you are really happy with you team of doctors. Make sure they're compassionate. If not , get an appointment with another team. Best of luck . I'm just. A year from my diagnosis and cancer free now! You go girl!
    over 7 years Flag
    • Saana Malik Profile
      anonymous
      Patient

      Thank you

      over 7 years Flag
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Ali, this is a great suggestion. I wish I would have known about this site when I went through treatment. Your suggestion... I would have taken. I was not happy with my team... at first. I was only lukewarm about them in the end. Really,...

      more

      Ali, this is a great suggestion. I wish I would have known about this site when I went through treatment. Your suggestion... I would have taken. I was not happy with my team... at first. I was only lukewarm about them in the end. Really, your point is so important. Thanks for sharing with not only Saana but every one who reads this.
      Take care, Sharon

      over 7 years Flag
  • Marianne R. Profile
    anonymous
    Survivor since 2011
    Start a notebook, keep a diary, so much information comes so fast there is no way you can remember everything. Take you spouse, friend, relative to your appointments to support you and to help you listen and ask questions. Faith gives you the will to fight when you don't think you have anything left. Please stay in touch. God Bless you as your journey starts.
    over 7 years Flag
    • Saana Malik Profile
      anonymous
      Patient

      Thank you Marianne I'm going to do just that I feel like I'm in a fog now

      over 7 years Flag
    • Marianne R. Profile
      anonymous
      Survivor since 2011

      The jouney is daunting and some days scary but is doable. We are all here and are in various stages of the journey we lean on each other.

      over 7 years Flag
    • Jk Joyce Profile
      anonymous
      Survivor since 2012

      It is a scary time when you first find out. I don't know how I could have stayed strong without God with me. I had to have a lumpectomy in Feb. and another surgery to remove more margin. I just finished 16 radiation treatments and I am burnt but I...

      more

      It is a scary time when you first find out. I don't know how I could have stayed strong without God with me. I had to have a lumpectomy in Feb. and another surgery to remove more margin. I just finished 16 radiation treatments and I am burnt but I am still kicking. I refuse to let cancer make me a statistic! Fight on sister....we are all behind you!

      over 7 years Flag
    • Saana Malik Profile
      anonymous
      Patient

      Thank you Kaye ..

      over 7 years Flag
  • Tracy Cook-Brewton Profile
    anonymous
    Learning About Breast Cancer
    I love your spirit about your journey! Stay positive, ask lots of questions,& do some of your own research . Just be careful about who and where you get your info from. Stay encouraged!
    over 7 years Comment Flag
  • Wendy DeLong Profile
    anonymous
    Learning About Breast Cancer
    Lots of good advice here..... I did same thing. I combined a journal, appt book. Along with dr names, phone #s and that dr's nurse 's name too. You will be given lots of Info. Very overwhelming and emotional. It gets better once the wheels are in motion. I mean you will still have your moments but not as many! Good luck !!
    over 7 years Comment Flag

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