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My surgeon is hesitating to do a breast reduction because of my LCIS. I have horribly large, pendulous, physically and mentally painful, deformed breasts; I'm more than desperate for this surgery. Has anyone had the same situation?

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anonymous

Stage 0 Patient about 7 years
 
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    anonymous
    Survivor since 2012
    Dear A. Without anymore info other than.LCIS. For me , I wouldn't be thinking reduction as much as mastectomy. Get another surgeon that's looking at the whole picture. :-( Jo
    about 7 years Comment Flag
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    anonymous
    Learning About Breast Cancer
    I would suggest having a bilateral mastectomy with reconstruction that way you would get great breasts made the size you like and no need for further mammograms.
    about 7 years Comment Flag
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    anonymous
    Stage 2A Patient
    There are Dr.'s that do Oncoplasty. That combines breast reduction (wide marginal area done so you get clear margins) and plastic surgery. There aren't a lot of Dr.'s who do procedure but you should ask breast surgeon about it.
    about 7 years Flag
    • Áine Mac Lir Profile
      anonymous
      Stage 0 Patient

      Without a moment's hesitation I lobbied for the prophylactic bilateral mastectomy with reconstruction when I first was diagnosed, but as far as Medicaid is concerned, LCIS is not truly cancer. (In case anyone wonders why I am on Medicaid - I am...

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      Without a moment's hesitation I lobbied for the prophylactic bilateral mastectomy with reconstruction when I first was diagnosed, but as far as Medicaid is concerned, LCIS is not truly cancer. (In case anyone wonders why I am on Medicaid - I am manic-depressive and the drugs that keep me alive and stable add up to over $1K a month. So I am forced to depend on a broken system). I have the opportunity for a reduction if I can get the surgeon past the fact I have LCIS. So, it's not cancer when I want a mastectomy, but it IS cancer when I want a reduction.

      about 7 years Flag
  • julie s Profile
    anonimamente
    Stage 2A Paciente
    I am sorry it is so frustrating to get the treatment that you want... Keep advocating for yourself until you get what you want!
    about 7 years Flag
    • Áine Mac Lir Profile
      anonymous
      Stage 0 Patient

      Thank you, I appreciate your encouragement!

      about 7 years Flag
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    anonymous
    Stage 0 Patient
    His rationale is that all my baseline xrays, MRI, mammos would be useless in monitoring the LCIS which we are just keeping an eye on at this time. He's worried if the LCIS evolved in any way, the changes might not be evident without the baselines to compare to. He's worried he could do more harm than good. I'm going to call my referring surgeon here in my town who wrote a very strong referral for me feeling it would be easier in the long run to monitor the LCIS if I had the surgery. I would love to get more consultations, but this guy is the only one in the whole state of Maine who takes MaineCare (Maine's term for Medicaid) for this procedure. That's not unusual with specialists in our state; as MaineCare is slow and cheap in paying. One gets used to traveling, even for dentists willing to take MaineCare I have to drive an hour to Bangor. I want this surgery so bad I'm not concerned with any risk. After the changes and healing has taken place we can take new baselines, right?
    about 7 years Comment Flag

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