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  • Leslieanne  S Profile

    Hi I'm 47 and just got diagnosed as a stage 3 My Drs wanted to move fast had my port and first chemo last week.I Will have 16 weeks of chemo surgery then RADS.My ? In my latest mammogram was done 5 years ago should've something showed up then ???

    Asked by anonymous

    Learning About Breast Cancer
    about 12 hours 2 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      I had yearly mammograms since I was 50 and was diagnosed at age 62. The year prior they thought they saw a suspicious area in the same breast but a different location and on doing additional imaging all was clear. In that year 2 new areas were seen in a different part of the breast but adjacent...

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      I had yearly mammograms since I was 50 and was diagnosed at age 62. The year prior they thought they saw a suspicious area in the same breast but a different location and on doing additional imaging all was clear. In that year 2 new areas were seen in a different part of the breast but adjacent to the year prior. In the surgical specimen they found 2 other areas, so 4 areas in 1 breast. I have very dense tissue and I recall asking the Radiologist when he was injecting the local for my first biopsy could these areas been obscured by the dense tissue and he said it was possible.

      1 comment
    • Merri Sedgwick Profile
      anonymous
      stage_1 Patient

      I’m not sure that even a doctor could answer that question. All tumors have their unique composition where some are faster growing than others, so who knows when this tumor started. The focus is on the here and now, AND the important thing is that it was found, you’re getting treatment, and...

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      I’m not sure that even a doctor could answer that question. All tumors have their unique composition where some are faster growing than others, so who knows when this tumor started. The focus is on the here and now, AND the important thing is that it was found, you’re getting treatment, and you’re moving forward! Stay strong!

      Comment
  • chloe michaud Profile

    I have little painful pimple like blisters on my wrists and arms. Is this related to my chemo meds!

    Asked by anonymous

    Learning About Breast Cancer
    • Betti A Profile
      anonymous
      Survivor since 2013

      I'm not a doctor but imagine it could be from some of meds. you're getting. Have you told your team about it? My place gave me 2 phone numbers; 1 to use during the day and the other for after hours.

      Comment
    • Naluh Maues Profile
      anonymous
      Learning About Breast Cancer

      It could be. But is a rash anyway, so, you have to ask your doctor what to do about it!

      Comment
  • Tammy Gerberding Profile

    Has anyone had a 156ui alp three weeks later 152 ui alp

    Asked by anonymous

    Learning About Breast Cancer
    1 day 1 answer
    • Betti A Profile
      anonymous
      Survivor since 2013

      I think I know what alp is but your doctor should be explaining what the number means. We aren't doctors on this site only patients or family members.

      Comment
  • Tammy Gerberding Profile
  • FLORIDA PHILLY Profile

    I will be going to get a port installed this coming week and would like any information you might have . What anesthesia do they give, etc. Thank you for your hel

    Asked by anonymous

    Learning About Breast Cancer
    2 days 4 answers
    • View all 4 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      Mine was done with what they call "conscious sedation". It involves a pain med and sedative that doesn't put one to sleep. My friend had hers put in with a general anesthetic. If you have ever had a colonoscopy it's a conscious sedation they use and some dentists also use it. I still have...

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      Mine was done with what they call "conscious sedation". It involves a pain med and sedative that doesn't put one to sleep. My friend had hers put in with a general anesthetic. If you have ever had a colonoscopy it's a conscious sedation they use and some dentists also use it. I still have mine in 4 1/2 years after it was put in as it comes in handy for blood draws, etc. but a nurse trained in accessing them is needed as lab techs. aren't.

      Comment
    • Rhonda M Profile
      anonymous
      Survivor since 2012

      It is very scary, for sure! Best of luck with your treatment. Stay strong!

      Comment
  • M H Profile

    I'm Estrogen and Progesterone receptor + and HER2+ and am refusing chemo. I have doubts of fulfilling a daily radiation tx course due to other conditions. Has anyone refused chemo and been unable to do Rad Tx?

    Asked by anonymous

    stage_1 Patient
    2 days 1 answer
    • Naluh Maues Profile
      anonymous
      Learning About Breast Cancer

      It is totally your right to deny chemo, but as a survivor for 8 years I would ask you to reconsider, especially because you are triple positive, what is a little serious.

      2 comments
  • paula gittens Profile

    Today I walk in the breast cancer walk. This is my fifth time walking but my fourth year surviving. God is good all the time. Happy survivor day to all of you.

    Asked by anonymous

    Survivor since 2013
    2 days 1 answer
    • Betti A Profile
      anonymous
      Survivor since 2013

      On Saturday the 14th I too walked in my Making Strides Against Breast Cancer walk. I've done them and the Relay for Life since my diagnosis and feel very good about helping out others. I'm glad you're doing well Paula. I'm closing in on year #5, time sure has flown by.

      3 comments
  • anonymous Profile

    Lumpectomy verses mastectomy?

    Asked by anonymous

    Patient
    4 days 6 answers
    • View all 6 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      You need to do what you're most comfortable with. I had decided I was going the mastectomy route and my Surgeon agreed it was my best option due to some factors I had. In reading her preop notes she said I would have been disfigured with just a lumpectomy.

      Comment
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      I also had both. I was diagnosed with stage 0 cancer @46 & had A lumpectomy in 2012 margins were not clear so 2nd lumpectomy 1 week later. More micro calcifications found in different area 19 months later & I ended up getting a double mastectomy with immediate reconstruction in 2014. What I...

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      I also had both. I was diagnosed with stage 0 cancer @46 & had A lumpectomy in 2012 margins were not clear so 2nd lumpectomy 1 week later. More micro calcifications found in different area 19 months later & I ended up getting a double mastectomy with immediate reconstruction in 2014. What I learned was a mastectomy should have been my choice from the beginning. I figured my cancer was found so early that lumpectomy made more sense & I was scared thinking about loosing my breast. It's hard to make such a life altering decision so quickly & Not have lots of time to educate yourself. I'm just grateful I'm Alive 5 years later doing amazing and had excellent medical coverage that paid for everything. I also had a hysterectomy as well being that both breast & cervical cancer run in my family. At the end of the day it's your decision to make no matter what. Prayers

      1 comment
  • Rita Siomos Profile

    Has anyone used the chemo drug Capecitabine

    Asked by anonymous

    Learning About Breast Cancer
    4 days 1 answer
  • Ruth Montanez Profile

    Hi my husband just had chemo done next to his liver but every time he eats his taste is different he does not like the taste of anything is this normal I need to know what to do

    Asked by anonymous

    Learning About Breast Cancer
    8 days 4 answers
    • View all 4 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      I'm not a doctor but recall being told the chemo. meds. I got could alter my taste. Some foods I liked prior to chemo. didn't taste all that good during chemo. and some I didn't like tasted good. Also I was told if possible to use plastic utensils as normal silverware can cause a metallic taste...

      more

      I'm not a doctor but recall being told the chemo. meds. I got could alter my taste. Some foods I liked prior to chemo. didn't taste all that good during chemo. and some I didn't like tasted good. Also I was told if possible to use plastic utensils as normal silverware can cause a metallic taste in my mouth. They told me to eat whatever tasted good at the time and it will get better. He needs to talk with his team and see what they say.

      Comment
    • DOLORES Islava Profile
      anonymous
      Learning About Breast Cancer

      It will get better I yes starting to taste food and i"m.done with chemo a month ago

      Comment
  • Desiree Jordan Profile

    How long after chemo does neuropathy end

    Asked by anonymous

    Learning About Breast Cancer
    9 days 2 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      Everyone is affected differently. I'm thankful I never experienced it but was prepared if I did. I have a friend who had it before her chemo. so didn't know if it worsened or not.

      2 comments
    • Naluh Maues Profile
      anonymous
      Learning About Breast Cancer

      Sometimes a few months. Anything from 2 to 6 months. Sometimes, it’ll never gomaway. Depends how strong and long was the chemo and how much damage it made for your nerves terminations.
      Sorry, I know it’s not an answr we want to read but I live with it for almost 8 years and I’m totally used to...

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      Sometimes a few months. Anything from 2 to 6 months. Sometimes, it’ll never gomaway. Depends how strong and long was the chemo and how much damage it made for your nerves terminations.
      Sorry, I know it’s not an answr we want to read but I live with it for almost 8 years and I’m totally used to it.
      Oh, BTW, acupuncture, yoga or pillates helps a lot!

      Comment
  • Lacy Scheutzow Profile

    So just got home from the hospital did anyone have pain from from arms to legs they said it Normal i flaps repmoved from back once up I find I just sugury on Wednesday and pluse I have 6 drains in and I q ball pump

    Asked by anonymous

    Learning About Breast Cancer
    10 days 4 answers
    • View all 4 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      It sounds like you had major surgery and I imagine some pain is to be expected. Don't overdo yourself and take it easy, OK? All my best, Betti

      Comment
    • Rhonda M Profile
      anonymous
      Survivor since 2012

      I had the same surgery in 2012 and I know the pain you are in. Please take it easy. Doing too much too soon will slow healing and cause scar tissue build up. Stay strong and good luck with your treatment! Don't be afraid of asking for help when you need it so your energy and focus is on...

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      I had the same surgery in 2012 and I know the pain you are in. Please take it easy. Doing too much too soon will slow healing and cause scar tissue build up. Stay strong and good luck with your treatment! Don't be afraid of asking for help when you need it so your energy and focus is on RECOVERY.

      Comment
  • Thumb avatar default

    Does anybody besides me think that radiation was worse than chemotherapy

    Asked by anonymous

    stage_3c Patient
    11 days 2 answers
    • anonymous Profile
      anonymous
      Patient

      No not at all ... chemo to me was way worse rads just made me very tired / weak feeling

      Comment
    • Betti A Profile
      anonymous
      Survivor since 2013

      I didn't find one any worse than the other. My skin stayed intact during radiation which I'm thankful for but know those who had their skin blister and break down. Everyone's body reacts differently to both chemo and rads.

      Comment
  • Victoria Fermin  Profile

    Is there any other treatment to take for masectomy other than chemotherapy

    Asked by anonymous

    Patient
    11 days 4 answers
    • View all 4 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      Everyone's cancer is unique to them hence everyone's treatment is different. What is your team recommending? There are so many factors that come into play besides just knowing it was cancer.

      1 comment
    • Victoria Fermin  Profile
      anonymous
      Patient

      It's only a month now since I had have my masectomy done, my team of doctors is still awaiting the outcome of my results from the 5cm mass i had an some lymph nodes under the armpit , while in waiting i have been contemplating on using green foods an juicing fruits an Veges for i don't want to...

      more

      It's only a month now since I had have my masectomy done, my team of doctors is still awaiting the outcome of my results from the 5cm mass i had an some lymph nodes under the armpit , while in waiting i have been contemplating on using green foods an juicing fruits an Veges for i don't want to partake in any chemotherapy, hense my questions I'm searching for help i am devasted as to what chemo does do to an individual and although it is different from person to person i still contemplating . All advice greatly appreciated thank you .

      Comment
  • Thumb avatar default

    17 years old I been having breast pain for 6 months I have a family history of breast cancer on both sides. I had ultrasound they found nothing my mom asked for mri they found 9mm mass and I was told to get another ultrasound

    Asked by anonymous

    Learning About Breast Cancer
    13 days 3 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      I'm not a doctor but they probably don't want to do a biopsy on a person your age unless absolutely necessary. It sounds like it is really small and may be difficult to see it to do a biopsy. I had 2 areas and after a positive biopsy only then was an MRI ordered to see if was 2 separate areas...

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      I'm not a doctor but they probably don't want to do a biopsy on a person your age unless absolutely necessary. It sounds like it is really small and may be difficult to see it to do a biopsy. I had 2 areas and after a positive biopsy only then was an MRI ordered to see if was 2 separate areas or 1 large one with an area coming off of it. I understand you have a strong family history of breast cancer, I had none but when all was said and done I had 4 areas of cancer in my one breast.

      Comment
    • Faith Franklin Profile
      anonymous
      Learning About Breast Cancer

      additontion to my question. but my question is why haven’t ask for biopsy to check mass

      Comment
  • Thumb avatar default

    I just did a self exam to my breats, because I notice some differences in sizes as well I been having pain for a while now. I also notice and felt a big lump tissue on upper side of my breast. Is that something I should worry about?

    Asked by anonymous

    Learning About Breast Cancer
    16 days 3 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      Any changes to one's body should be checked by their doctor as some testing may be needed.

      Comment
    • Naluh Maues Profile
      anonymous
      Learning About Breast Cancer

      Most of the times a woman find some lump or weirdness to her breasts is not cancer. But it could be!
      Definitely there’s somthing different and weird going on there that has to be checked by a doctor!

      Comment
  • Duane Beausoleil Profile

    Looking for people who did surgery and life changes instead of Chemo and radiation

    Asked by anonymous

    Learning About Breast Cancer
    17 days 6 answers
    • View all 6 answers
    • anonymous Profile
      anonymous
      Patient

      I was also stage 2b I did all that was recommended chemo , rads and dbl mastectomy I want to know I tried everything to keep it from coming back. Best of luck .

      Comment
    • Betti A Profile
      anonymous
      Survivor since 2013

      I did everything recommended by my team; surgery, chemo, radiation, and a hormone blocker as I was willing to fight this thing called breast cancer with all that I had and now have. I am now almost 5 years out and am living life to the fullest. All my best to your wife no matter what she...

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      I did everything recommended by my team; surgery, chemo, radiation, and a hormone blocker as I was willing to fight this thing called breast cancer with all that I had and now have. I am now almost 5 years out and am living life to the fullest. All my best to your wife no matter what she chooses to do.

      Comment
  • Cassandra Norton Profile

    Anyone received whole brain radiation

    Asked by anonymous

    Learning About Breast Cancer
    18 days 2 answers
    • Gina Escobar Profile
      anonymous
      Learning About Breast Cancer

      O Just receive 10

      Comment
  • Thumb avatar default

    Does insurance pay for a double if the genetic test shows no BRACA?

    Asked by anonymous

    Learning About Breast Cancer
    19 days 7 answers
    • View all 7 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      You need to check with your insurance company as what one may pay others won't.

      Comment
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      My BRACA was also negative & insurance paid for double mastectomy with reconstruction

      Comment
  • Thumb avatar default

    Went through chemo and radiation over 2 years ago, now on a hormone blocker, have trouble with belly fat that I never had before, I can't seem to lose it no matter what I do, does anyone else have this issue?

    Asked by anonymous

    Survivor since 2014
    19 days 4 answers
    • View all 4 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      Yep, it started after I completed treatments 4+ years ago. I had been within 7# of my ideal weight when I was diagnosed and now it seems to be a never ending battle, I almost think my eating habits got worse for some reason and am really working on getting the extra weight off as I know it's not...

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      Yep, it started after I completed treatments 4+ years ago. I had been within 7# of my ideal weight when I was diagnosed and now it seems to be a never ending battle, I almost think my eating habits got worse for some reason and am really working on getting the extra weight off as I know it's not good.

      Comment
    • Thumb avatar default
      anonymous
      Survivor since 2014

      Hell yes. Menopause chemo and life seems to mean ... for me
      Fat belly !!
      Now trying diet shakes ... but I'm Gluten and lactose intolerant.. so finding it hard !

      But, it's better being fat .. than the other option🌷. ( in heaven)!! 🥀

      Comment
  • Lynne G Profile

    I'm seven years cancer free, yet I STILL have pain in the affected breast. My oncologist said many people never lose the breast pain. Should I be worried? My mammo was normal.

    Asked by anonymous

    Survivor since 2010
    20 days 3 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      I had a mastectomy and my chest from my breast bone through my axilla is still numb due to 1 nerve being cut, was told it would always be this way and I've gotten used to it.

      Comment
    • Leigh Anne F. Profile
      anonymous
      Survivor since 2014

      I had BC 4 years ago. This past May I finally asked to have a scan done. The pet scan showed cancer in my breast again...even after a double mastectomy. I had pain in that breast for a while and we shrugged it off as nerves still repairing themselves. Nope! It was 3 tumors in my breast!...

      more

      I had BC 4 years ago. This past May I finally asked to have a scan done. The pet scan showed cancer in my breast again...even after a double mastectomy. I had pain in that breast for a while and we shrugged it off as nerves still repairing themselves. Nope! It was 3 tumors in my breast! Heartbreaking as I am back on chemo again.

      3 comments
  • Laurie Daly Profile

    I just found out I have stage 3 triple negative. breast cancer. Anyone else going through this? Starting chemo after some more testing. Anyone here stage 3, triple negative with results? Thank you.

    Asked by anonymous

    Learning About Breast Cancer
    20 days 3 answers
    • Thumb avatar default
      anonymous
      stage_2b Patient

      Laurie, do you have a cancer clinic near where you live? They determine your best treatment plan based on the kind of cancer, genetic testing, your overall health, etc.

      I was diagnosed with Stage 2b Triple Negative breast cancer in November 2016, with 3 visible tumors, 1 breast, 1 armpit...

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      Laurie, do you have a cancer clinic near where you live? They determine your best treatment plan based on the kind of cancer, genetic testing, your overall health, etc.

      I was diagnosed with Stage 2b Triple Negative breast cancer in November 2016, with 3 visible tumors, 1 breast, 1 armpit lymph node, one mammary lymph node (next to my sternum).

      Treatment for me was in 3 stages:
      1. Chemotherapy: 4 A/C infusions (Adriamycin + Cyclophosphamide) followed by 12 paclitaxel infusions
      2. Surgery: lumpectomy of breast tumor & 3 armpit lymph nodes (1 cancerous, 2 clear) The mammary node was inaccessible.
      3. Radiation: 33 sessions, which just started this week (9/25/17).

      I had scans between the chemo and surgery, which showed no sign of the original 3 tumors. When the surgery then showed clear margins around the tumors, the doctors declared a "complete pathological response" (CPR) to chemotherapy meaning no sign of cancer.

      Radiation is still necessary because they want to "clean up the crumbs" which may be there but not visible.

      Each stage has been hard but not impossible. I'm glad my medical team told me to plan on a year of treatment because it will be that, plus a little more recovery time. The results have been good, and I can honestly say it has not been as hard as I anticipated, still being able to maintain a routine of almost daily walks and much of my regular responsibilities. Drank a LOT of water to stay hydrated, and ate what I could tolerate. There are so many ways to deal with nausea during chemo, it's nothing like it used to be. No symptoms from radiation yet but they may come halfway through the 33 sessions. And maybe not!

      I was advised to stay positive, get a second opinion when not confident in the first (I did, and it changed my treatment plan), and with my doctor's permission, stay as active as possible.

      Best wishes, Laurie!

      Comment
    • Rhonda M Profile
      anonymous
      Survivor since 2012

      Going through chemo first? I was stage 2-B triple negative breast cancer in September 2012. I had a mastectomy immediately (5 cm tumor) and then 6 treatments of TAC (chemo regimen) over the course of 5 months. They removed 3 lymph nodes, the first one cancer, the other 2 clear. My doctor said...

      more

      Going through chemo first? I was stage 2-B triple negative breast cancer in September 2012. I had a mastectomy immediately (5 cm tumor) and then 6 treatments of TAC (chemo regimen) over the course of 5 months. They removed 3 lymph nodes, the first one cancer, the other 2 clear. My doctor said radiation doesn't have any positive effect on triple negative cancer so they didn't recommend radiation for me. My doctor also told me if my cancer came back, it would come back within 2 years and if I went past 2 years, I could consider completely cured. I regret not getting a second opinion as I've now heard of many people getting both radiation and chemo. I've also not found the 2 year mark comment in any documentation. After all of your treatments, please do all you can to remove toxins from your diet and environment. Also, always remain watchful and never consider to be cured of cancer. Keep up on all your check ups and tests. I regret doing all of this and now facing metastasized brain cancer just 1 month shy of the 5 year mark. Good luck and best wishes. STAY STRONG!

      Comment
  • Thumb avatar default

    Am i able to get a mammogram without my mother? She isnt the most ivolved and i feel like she wont take me seriously regarding the concerns i have regarding the lumps in my breasts. Im 17 years old.

    Asked by anonymous

    Learning About Breast Cancer
    21 days 5 answers
    • View all 5 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      I agree with Trisha, find an adult you feel comfortable talking with. I'm not a doctor but you are too young to get a mammogram but if the doctor feels it's needed an Ultrasound study would be the test he/she would order.

      Comment
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      My friends child had a suspicious area being that's now watched @ 17. She has cancer in her family so no age is to young to check. Go in for a routine physical & talk to a Dr about it.

      Comment
  • Thumb avatar default

    Sos I have breast pain ! I am not due a mammogram till december ! I'am 40'ish my mom had it ! Nothing else I see but feel other than caffeine lumps ! Sos help

    Asked by anonymous

    Learning About Breast Cancer
    22 days 3 answers
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      You don't have to be a certain age to get a mammogram especially if you have a family history of cancer. Ask your Dr

      1 comment
    • Betti A Profile
      anonymous
      Survivor since 2013

      Have you talked with your doctor about it? If felt it is needed they can always do a mammogram earlier than December. We always had time to do ones earlier than usual if it was deemed necessary.

      Comment
  • Thumb avatar default

    My surgeon wants to proceed with post-surgery radiation and has not seen/tested the mass; is that protocol? And anyone had IORT therapy?

    Asked by anonymous

    Patient
    22 days 1 answer
    • Betti A Profile
      anonymous
      Survivor since 2013

      I'm sure the mass was tested with the biopsy specimen or you wouldn't have had surgery. I'm not a doctor but I do know they wouldn't be proceeding with radiation if the biopsy were negative. If IORT is what I think it is it wasn't available where I was at.

      2 comments

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