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Just got my Oncotype test results back... It's a 5 . What does this mean to my prognosis? ILC stage 1b 0.3 cm grade 1 with LCIS had lumpectomy and 2 nodes removed 1 had a micro something in it doctor said he got good clean margins and no cancer left...

Carla Victor-rawson Profile
Asked by

anonymous

Learning About Breast Cancer about 7 years
 
  • Evelyn Heilbrunn Profile
    anonymes
    Survivant depuis 2012
    Interestingly, I just went to my doctor for a 3-month check up and we were talking about oncotypes. I had Stage 2 invasive, and my oncotype was high so there was no question about chemo. However, a neighbor who is seeing the same doctor had DCIS with a high oncotype. When talking to my doctor about it today, he said that the oncotype for invasive vs. the oncotype for DCIS indicate different treatments. If it's high and invasive, the analysis is for chemo. If it's DCIS and high, the analysis is for radiation. Just an interesting tidbit I never knew. Either way you look at it though, a 5 is great. Best of luck to you!
    about 7 years Comment Flag
  • Thumb avatar default
    anonymous
    Stage 1 Patient
    Just wondering, what number are you talking about? Number of what or number for what? I'm lost.
    about 7 years Comment Flag
  • Thumb avatar default
    anonymous
    Stage 1 Patient
    I wasn't offered an oncotype test. How did you get one?
    about 7 years Flag
    • Elaine Mills Profile
      anonymous
      Stage 2B Patient

      ONCOTYPE-DX tests are very expensive and have not been paid for by insurance companies for very long. Some oncologists do not even offer them since their out of pocket cost is around $4800 without insurance. Your staging was very early and your...

      more

      ONCOTYPE-DX tests are very expensive and have not been paid for by insurance companies for very long. Some oncologists do not even offer them since their out of pocket cost is around $4800 without insurance. Your staging was very early and your doctor must have felt confident that the size of your tumor would be able to be irradicated without chemotherapy. This is great news! Best wishes for you.

      about 7 years Flag
    • Thumb avatar default
      anonymous
      Stage 1 Patient

      I have been in so much pain (still, after two years) that I only remember the onco said something about chemo being too drastic for me. I don't know how he knew that without testing?? I have double coverage on insurance, so that shouldn't have...

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      I have been in so much pain (still, after two years) that I only remember the onco said something about chemo being too drastic for me. I don't know how he knew that without testing?? I have double coverage on insurance, so that shouldn't have been a factor. Oh well, evrything that can go wrong has gone wrong. I woke up this am. in so much pain I was crying. Can't take pain meds other than an occassional aspirin. They come back up and are on me and the floor. Don't have the energy to clean it up. I think I have something called frozen shoulder. Wish I'd never had the surgery at all. Death is easier than what I'm going through.

      about 7 years Flag
  • Elaine Mills Profile
    anonymous
    Stage 2B Patient
    YAY!! These are all great outcomes. Doesn't mean you are going to not have some sacrifices to make. The 5 year meds can really be nasty sometimes. The emotions of going through what you've gone through is present for a long time past the healing of the surgical wounds. But your prognosis is great. God bless you!
    about 7 years Flag
    • Thumb avatar default
      anonymous
      Stage 1 Patient

      I had a hysterectomy many years ago. No ovaries, uterus, cervix, etc. Nothing to produce estrogen. Why five years of something to repress estrogen? My skin is dry and breaking, my mouth is dry all the time, my hair is dry and falling out, my...

      more

      I had a hysterectomy many years ago. No ovaries, uterus, cervix, etc. Nothing to produce estrogen. Why five years of something to repress estrogen? My skin is dry and breaking, my mouth is dry all the time, my hair is dry and falling out, my nails are brittle, etc. I just heard that now they're proposing to increase it from 5 to 8 years!! WHY??

      about 7 years Flag
    • anne cennamo Profile
      anonymous
      Survivor since 2011

      Estrogen also comes from external things like (almost everything) plastics/chemicals, soy, different foods and pesticides, dairy- it's a nightmare! Oh and fat!!! Ugh!

      almost 6 years Flag
  • Mary Chase Profile
    anonymous
    Learning About Breast Cancer
    On toupee scores are based on -100 so a 5 is awesome! The lower your score the lower your rate of recurrence with the tumor. This info is viewed by your doctor in conjunction with all the other information he has obtained from your tests so i encourage you to discuss this with you doctor for a full picture. Best wishes!
    about 7 years Comment Flag
  • Bev Lloyd Profile
    anonymous
    Learning About Breast Cancer
    That's a great number. Mine was a 9 and I only needed radiation. The lower the number the better. Good luck to you.
    about 7 years Comment Flag
  • julie s Profile
    anonymous
    Stage 2A Patient
    This is good news! Your prognosis should be good!
    about 7 years Comment Flag
  • anonymous Profile
    anonymous
    Learning About Breast Cancer
    This is very good news. No chemo for you , but talk it over with your Oncologist. Scores from 1-18 need no chemo, it does not change your survival chances at all to have chemotherapy under score of 18, , score 19-10 possible chemo, scores 31-100 definitely need chemotherapy. Your tumor was very small and with no cancer on the margins you are in great shape for good prognosis. My score was 13 and I was excited so 5 is wonderful. Good luck. I am in my second week of radiation and so far so good.
    about 7 years Comment Flag

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