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I have micropapillary breast cancer. The Internet isn't very helpful. My surgeon acts like the diagnosis isn't a big deal, but I had a recurrence less than 1 yr from a double mastectomy. Has anyone else been diagnosed with this?

Lady Butterfly Profile
Asked by

anonymous

Learning About Breast Cancer over 6 years
 
  • Marianne R. Profile
    anonymous
    Survivor since 2011
    It sounds like it might be time for a second or third opinion. I would bring peace of mind that you are doing the right thing or the information that you need to change the course of treatment.
    over 6 years Comment Flag
  • Lady Butterfly Profile
    anonymous
    Learning About Breast Cancer
    My husband and I have decided that if the cancer comes back we have to go somewhere else for treatment. Unfortunately we live in a medium sized city with basically only 3-4 options and my insurance only covers this one group of drs. We will do what it takes to save my life, I just pray it doesn't come at the cost of financial ruin. I have enough to feel guilty about as it is! :-)
    over 6 years Flag
    • Marianne R. Profile
      anonymous
      Survivor since 2011

      Check the other cities near you. Is there a university near you? Talk to your insurance company and ask for other groups 50 or 100 miles whatever you are willing to do. I know people who live very rural and go over 200 miles to the nearest cancer...

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      Check the other cities near you. Is there a university near you? Talk to your insurance company and ask for other groups 50 or 100 miles whatever you are willing to do. I know people who live very rural and go over 200 miles to the nearest cancer center or onc.

      over 6 years Flag
    • Lady Butterfly Profile
      anonymous
      Learning About Breast Cancer

      That is a very good idea. I will speak to my insurance company and see if I can go out of network and how to do that. Thank you. :). So, no-one here has had micropapillary breast cancer?

      over 6 years Flag
  • april jones Profile
    anonymous
    Learning About Breast Cancer
    I have and wondering if anyone had been diagnosed with this too I go in for my check up in October . May I ask did you have lymph node involvement ? I had double masectomy and put on tamoxifen for 5 years with a 10% reoccurrence
    about 3 years Comment Flag
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