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I have just been having a nose around the site, reading lots of great advice and personal accounts. Then I realised how old some of the posts were. I would love to hear updates and know how you are all doing. Do people keep in touch or drift away? x

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Asked by

anonymous

over 4 years
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  • Sharon Danielson Profile
    anonymous
    Survivor since 2007
    Lorna, I think this is a very small group here. I didn't join until I was way past treatment. I also belong to a facebook group called "Pink Sisters". Lots of those women came from this site and still stop by here once in a while. I am 8 years out now and living a very normal life. I am 67 years old and volunteer a ton of my time with emergency services in my community. I also have 7 horses which keep me busy. I never will forget 8 years ago how I thought my life had come to an end. My most important message to any woman with breast cancer is there is HOPE and breast cancer isn't a death sentence. You go through treatment and you come out the other side to live your life. Generally, you are a much stronger, and a better person for having gone through the experience. Take care, Sharon
    over 4 years Flag
    • lorna mceveley Profile
      anonymous
      stage_1 Patient

      I will look you up on FB . I don't feel you can get any better support than from those who have walked the path. Thank you for staying around to advise us newbies! X x

      over 4 years Flag
  • Nancy Ries Profile
    anonymous
    Survivor since 2011
    Lorna, my story is similar to yours. I was diagnosed Stage 1a in September, 2011. Microcalcifications on my annual mammogram in a pattern, not random. Cancer removed in surgical biopsy, 3 mm. No recommendation to check lymph nodes. 30 radiation treatments. Estrogen suppressor for 5 years that might turn into 10 depending on research. Doing everything I can to make certain I'm around to see my 4 grandsons, 2 to 11 years, graduate from college and make me a great grandmother!!!
    over 4 years Flag
    • lorna mceveley Profile
      anonymous
      stage_1 Patient

      It's all looking to me like 10 years on the blockers is imminent. I wonder why they told me in the first instance 15 rads when everyone seems to have more? Must ask! ( another question, they are going to love me!) Lol. Glad you are doibg well. Are...

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      It's all looking to me like 10 years on the blockers is imminent. I wonder why they told me in the first instance 15 rads when everyone seems to have more? Must ask! ( another question, they are going to love me!) Lol. Glad you are doibg well. Are you over the tiredness? Hope so x x

      over 4 years Flag
  • Elizabeth Heath Profile
    anonymous
    Learning About Breast Cancer
    I have been on the site since I was diagnosed in 2012. But then I found myself going back to work and getting busy with life etc. when I was first diagnosed I went into a tailspin. I was just so depressed that I really didn't make many comments but just read through the site just to get some support. Now that my mind is a little clearer I feel obligated to return to share my experiences as well. If you can help one person then it would have been worth it. I know you have all helped me. Thank you.
    over 4 years Flag
    • lorna mceveley Profile
      anonymous
      stage_1 Patient

      Yes I feel the same.. we know exactly how people and family are feeling and have to give back as well as take. Here for anyone who just needs to chat. Still learning so not up to giving much medical advise although that does belong to the doctors...

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      Yes I feel the same.. we know exactly how people and family are feeling and have to give back as well as take. Here for anyone who just needs to chat. Still learning so not up to giving much medical advise although that does belong to the doctors I think a personal account is very helpful too. hope you are well. Sending love

      over 4 years Flag
  • anonymous Profile
    anonymous
    Stage 1 Patient
    I joined this site soon after I was diagnosed in January of 2013, Stage 1, no lymph node involvement. I only needed surgery (double mastectomy) with no chemo or radiation, and have finished all of my reconstruction. I don't post here nearly as much as I used to, but I do still look in often. A lot of times I feel like I don't have that much to offer to the conversations since I haven't been through all of the same treatment as most of the ladies. However, my heart goes out to each and every one, whether we're seasoned veterans or newly diagnosed. I thank God for the support from the ladies here, and if I can help, I'm here too.
    over 4 years Flag
    • lorna mceveley Profile
      anonymous
      stage_1 Patient

      It's the best support from those who know isn't it. Glad you are doing well. . Onwards and upwards! Sending love x x

      over 4 years Flag
    • anonimamente Profile
      anonimamente
      Stage 1 Paciente

      Thanks, Lorna :). Hugs back to you! Laura

      over 4 years Flag
    • lorna mceveley Profile
      anonymous
      stage_1 Patient

      Can I ask at stage 1 with no lymph node involvement why you had double mastectomy? X

      over 4 years Flag
    • anonymous Profile
      anonymous
      Stage 1 Patient

      Hi Lorna - bear with me. :). While I was diagnosed with cancer at age 51, I'd been dealing with benign lumps and calcifications I was 29. Over the years there had been two lumpectomies and a stereotactic biopsy that were all benign, but I wasn't...

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      Hi Lorna - bear with me. :). While I was diagnosed with cancer at age 51, I'd been dealing with benign lumps and calcifications I was 29. Over the years there had been two lumpectomies and a stereotactic biopsy that were all benign, but I wasn't overly surprised when a mammogram and follow up finally came back as cancer. My tumor was close to the chest wall on the left side and was invasive lobular. An MRI showed other areas of concern on both sides, and while the biopsies of those areas were benign, we decided it was just the best move to take both sides. The post-surgery pathology showed precancerous areas on the right side, so that was the right call. Even if it had been clear, I would have been comfortable with the decision. Twenty years of "what now" each time they called me back - I was ready to move on. I've had other body parts that have staged rebellions in the past 8 years too, so I've gotten used to being in combat mode. :). Hope your journey goes smoothly - prayers going up for you.

      over 4 years Flag
    • lorna mceveley Profile
      anonymous
      stage_1 Patient

      Wow! You have had a long ride! Respect x I hope life is being good to you. Sending love x x

      over 4 years Flag
    • anonymous Profile
      anonymous
      Stage 1 Patient

      Thanks, Lorna. :). Life is indeed good - my honey and I got married last year, and we're happy to be dealing with the normal stuff of life again and just enjoying the blessing of being together. Crazy things still happen - we just have an...

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      Thanks, Lorna. :). Life is indeed good - my honey and I got married last year, and we're happy to be dealing with the normal stuff of life again and just enjoying the blessing of being together. Crazy things still happen - we just have an easier time seeing what's important and what isn't now. He was with me through all of the appointments and procedures, and has been my biggest cheerleader every step of the way. Wishing you good support and easy recoveries. :)

      over 4 years Flag
    • lorna mceveley Profile
      anonymous
      stage_1 Patient

      Aww that sounds lovely and you're right. It sure is a wake up call to what's important in life! Glad
      You have someone special to share it with...stay happy x x x

      over 4 years Flag
  • Lou Cam Profile
    anonymous
    Survivor since 2013
    Hi, Lorna, I am on here often, but lately many of my answers don't post for some reason. I finished surgery and radiation 2 years ago. I was 2A , estrogen positive . I had a low onco dx score, so I did not have chemo. I have second guessed this decision a lot, but so far, I am doing well. No lymph nodes were involved. I asked about further testing , like you did, but was told that without lymph nodes being positive, they don't usually do more scans. But, every doctor and facility, and treatment plan is different. I am on Femara for about 3 more years. Best of luck with your treatment. - Lou.
    over 4 years Flag
    • lorna mceveley Profile
      anonymous
      stage_1 Patient

      Oh glad you're doing well..I guess lots of us worry it's somewhere else in the body but hey they can't blame us for worrying! Lol. . Sending love x

      over 4 years Flag
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      Unfortunately reoccurrences are common. Be diligent about your follow up exams and report any type of pain in your bones or elsewhere. If u could I would shout from the roof top to go to a teaching hospital if possible because I believe that the...

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      Unfortunately reoccurrences are common. Be diligent about your follow up exams and report any type of pain in your bones or elsewhere. If u could I would shout from the roof top to go to a teaching hospital if possible because I believe that the doctors are more up to date on research

      over 4 years Flag
    • lorna mceveley Profile
      anonymous
      stage_1 Patient

      Yes you are right to be vigilant and I intend to be though I worry I will never be away from the doctors with any aches and pains! We need reassurance for sure and should not be made to feel like hypochondriacs. I am sure with time we will sart to...

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      Yes you are right to be vigilant and I intend to be though I worry I will never be away from the doctors with any aches and pains! We need reassurance for sure and should not be made to feel like hypochondriacs. I am sure with time we will sart to relax a little. Hope you are doing well. Lots of love

      over 4 years Flag
  • sharon s Profile
    anonymous
    Learning About Breast Cancer
    I' found the site fairly quickly and have been on and off since march of 2013. We like to encourage where we can. I didn't have a masectomy but had triple positive BC. So treatment was long. I tend to give a shout out to Herceptin gals since we get infusions and live in the hospital so much longer than most. Cheers
    over 4 years Flag
    • lorna mceveley Profile
      anonymous
      stage_1 Patient

      There seems to be so many variables to BC that I was completely unaware of until getting it myself...still learning! Good luck and lots of love x x

      over 4 years Flag
    • lorna mceveley Profile
      anonymous
      stage_1 Patient

      Triple positive? I've just heard positive or negative...sounds like you have been through the mill but glad you're ok x

      over 4 years Flag
  • Betti A Profile
    anonymous
    Survivor since 2013
    I find some of the ones who were on the site when I first found it just over 2 years ago have drifted away. I read the site at least once a day. My story is quite long and I update it whenever something new comes around. You can read my story if you'd like as it would be a bit much for a comment here. I used to do mammograms for a living so when I heard those words, "your biopsy was positive" it caught me somewhat off guard but not totally for whatever reason. I'm a 2+ year survivor and living life to the fullest. Betti
    over 4 years Flag
    • lorna mceveley Profile
      anonymous
      stage_1 Patient

      Wow Betti, it must have been strange for you being in the business so to speak! Will read your story when I get home. Sending love x x

      over 4 years Flag
    • sharon s Profile
      anonymous
      Learning About Breast Cancer

      Hi Betti. How is your newish town treating you these days? Glad you moved? S

      over 4 years Flag
    • Betti A Profile
      anonymous
      Survivor since 2013

      It's the town I grew up in but it has really grown. I wanted to move before my diagnosis but opted to wait as the Onc. wanted me doing my chemo. first and then she got me a consult to see if rads. were needed. I really am a lot happier and I'd...

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      It's the town I grew up in but it has really grown. I wanted to move before my diagnosis but opted to wait as the Onc. wanted me doing my chemo. first and then she got me a consult to see if rads. were needed. I really am a lot happier and I'd do it again in a heartbeat.

      over 4 years Flag
  • Thumb avatar default
    anonymous
    Learning About Breast Cancer
    I have been here since 2011. I'm like Sharon and have joined the Pink Sisters. I was ILC stage 3 Jan 25,2016 I will reach my 5 year cancer free. I am living my best life with joy,peace, hope. My life is filled to the brim with horses, ranch, family, camping, cooking, some really close and living friends.
    over 4 years Flag
    • lorna mceveley Profile
      anonymous
      stage_1 Patient

      Your life sounds very full! Good to be doing things you love. So glad you have been clear for so long.sending love x x

      over 4 years Flag
  • paula gittens Profile
    anonymous
    Survivor since 2013
    I also joined this sight two years ago diagnosed in march 2013 stage 1 no lymph node involvement had rads. Unfortunately i suffered severe chest pains after lumpectomy and rads was delayed since i had to have surgery for my blacked artery to be stented. So i was unable to do chemo. Im doing fine today despite a few ups and downs. I am trying to exercise eat right and enjoy life to the fullest.
    over 4 years Flag
    • paula gittens Profile
      anonymous
      Survivor since 2013

      Blocked artery. I too read this site daily and would check at times

      over 4 years Flag
    • lorna mceveley Profile
      anonymous
      stage_1 Patient

      God that sounds nasty Lou but glad you're through the worst. Did your surgeon cause those complications? Sending love x

      over 4 years Flag
  • Trisha Muller Quinn Profile
    anonymous
    Survivor since 2014
    I found great help from this site . And even through I live in Australia most of the time treatment and people feelings and concerns are the same , wherever you live . It's been almost a year now since I was last in hosp ( staph infection) and I'm back working full time but still having dramas with my Dog Ears ( double mast , stage 3b)! With trying to get them removed,. So with this site I may not check it every day but I know if I need some support , or a little advice...It's just a few clicks away and I can get in touch with people who are living with recovery and not just reading it from a book !! So good luck everyone .. Keep posting :)))
    over 4 years Flag
    • lorna mceveley Profile
      anonymous
      stage_1 Patient

      Glad you're doibg well Trisha. Sending love. X

      over 4 years Flag
  • Norma  Cook Profile
    anonymous
    Survivor since 2014
    Hi Lorna: It's been just over a year since I received a diagnosis like yours. My surgery and treatments were similar to your doctors' recommendations. I've always believed that life is meant to be shared--both the good and the bad--so I chime in with a comment or answer whenever I have something to add that might be helpful. A favorite poem of mine tells about an old man who had struggled across a raging river. After reaching the other side, he set about building a bridge. When someone asked him what the point was of building a bridge if he never intended to go back where he had come from. His reply was that another traveler on that same pathway might not have the strength to cross on his own. "I'm buildiing the bridge for him", the old man explained. By the grace of God, that's how I want to live my life.
    over 4 years Flag
    • lorna mceveley Profile
      anonymous
      stage_1 Patient

      A beautiful story, very poignant. So glad you are doing well. ..sending love x x

      over 4 years Flag
  • lorna mceveley Profile
    anonymous
    stage_1 Patient
    P.s I don't know why I have appeared anonymous as I have filled in the details? my name is Lorna McEveley x
    over 4 years Comment Flag

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